Medical Record : Continuation Sheet for Consent to Participate in a Clinical Research Study 
Number ^Continuation: page 7 of 8 pages 
OTHER PERTINENT INFORMATION 
1 . When results of this study are reported at scientific and medical meetings or in journals, no patient 
will be specifically identified. Your medical records at Iowa Methodist Medial Center will be 
maintained in accordance with legal requirements and will be made available only as required by 
approved members of the Food and Drug administration, National Cancer Institute and Genetic 
Therapy Inc. unless your written approval has been obtained. 
2. This clinical procedure has attracted a great deal of attention from the media. We will make every 
effort to protect the confidentiality of you and your family. However, because of this media interest 
there is a greater risk than usual that information concerning your treatment will appear publicly 
without your consent. 
3. You are free to withdraw your consent to participate in this study and seek care from any physician at 
any time. This will involve no loss of benefits and will not penalize your care in any way. 
4. Iowa Methodist Medical Center will provide short-term medical care for any physical injury resulting 
from your participation in this research protocol. Long-term care or financial compensation for 
injuries is not otherwise offerred as part of this study. 
5. There is no financial compensation for participation in this study. Payment for the costs of your 
participation in this study will be sought from entities involved in this research study or your third 
party payer(s). 
6. For answers to questions or should any problem arise regarding this research protocol, you should 
contact one of the following investigators. 
Kenneth W. Culver, M.D. (Principal Investigator) (515) 241-6761 
Thomas Carlstrom, M.D. (Neurosurgeon) (515) 241-5760 
Charles J. Link, M.D. (Oncologist) 
(515) 241-6761 
7. We suggest you retain a copy of this document for future reference and personal records. 
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Recombinant DNA Research, Volume 17 
