Recombinant DNA Advisoiy Committee - 6/9-10/94 
"Part I-D-2-c-(3). Request for Autopsy" 
'To obtain vital information about the safety and efficacy of gene transfer, 
autopsies are to be performed, if feasible. Subjects should be informed that at 
the time of death, no matter what the cause, permission for an autopsy will be 
the request and of its scientific and medical importance." 
"Part I-D-2-c-(4). Interest of the Media and Others in the Research" 
'To alert subjects that others may have an interest in the innovative character of 
the protocol and in the status of the treated subjects, the subjects should be 
informed of the following: (1) that the institution and investigators will make 
efforts to provide protection firom the media in an effort to protect the 
participants' privacy, and (2) that representatives of applicable Federal agencies 
(e.g., the NTH and the FDA), representatives of collaborating institutions, vector 
suppliers, etc., will have access to the subjects' medical records." 
XIX. FUTURE MEETINGS OF THE RAC 
The next meeting of the RAC will be September 12-13, 1994, at the NIH, Building 3 1C, 
Conference Room 6, Bethesda, Maryland. 
XX. ADJOURNMENT 
Dr. Walters thanked Dr. Post for extending his service on the RAC to this meeting. He 
adjourned this meeting of the RAC at 1:00 p.m. on June 10, 1994. 
requested of their families. Subjects should be asked to advise their families of 
Executive Secretary 
I hereby acknowledge that, to the best of my 
knowledge, the foregoing Minutes and Attach- 
ments are accurate and complete. 
LeRoy B. falters, Ph.D. 
Chair 
Recombinant DNA Advisory Committee 
National Institutes of Health 
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Recombinant DNA Research, Volume 19 
