Listing of Follow-up Clinical Studies 
OTHER TESTS FOR POSSIBLE SIDE EFFECTS 
These tests will be done to follow for possible side effects 
of the therapy to other organs. These tests are done in addition to 
the other clinically indicated tests and tests previously mentioned. 
Only a brief outline is given to save space. Testing may be more 
frequent then indicated. 
GENERAL: 
weight, height, heart rate 
weekly x 6 then monthly 
respiratory weight, temperature 
blood pressure, head circumference 
Infectious disease: 
routine viral, fungal, 
and bacterial cultures 
for SCID patient 
every 6 months 
liver function tests 
(blood sample) 
same 
kidney function tests 
same 
gastrointestinal/nutrition 
evaluations 
same 
cardiac: 
EKG, echocardiac exam 
nuclide scan 
same 
respiratory evaluation: 
chest Xray, ear oximetry 
same 
skin biopsy 
yearly 
Central Nervous System: 
CAT scan and/or MRI 
lumbar puncture 
every 6 months 
Neuropsychiatric testing 
same 
Eye exam 
same 
Hearing evaluation 
same 
PUBLIC HEALTH TESTS 
gp70 titers and altered self 
assay to gp70 of family and 
health care workers 
before Bone Marrow Transplant 
and monthly while exposed to 
patient and then every 3 months 
for 6 months after exposure. 
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Recombinant DNA Research, Volume 12 
