continue to receive your medicine called PEG-ADA and will be 
observed very carefully by your doctors and nurses for any 
problems. You might get some side effects such as chills, fever, 
upset stomach, body aches, or possibly a rash. These side 
effects may make you feel some discomfort, but these problems can 
be helped by medicines, such as Tylenol. 
The doctors believe that this therapy is safe and hope, but 
cannot be sure, that- it will improve your body's ability to fight 
infections. It is important for you to know that this is a brand 
new therapy and you will be one of the first children to receive 
it. If you have any questions or worries about it, you should 
talk to your doctors and your family. If your parents give 
permission for you to be enrolled in this research study, then 
the NIH doctors will want to follow your condition for years. 
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