LONG TERM FOLLOWUP 
We will follow your progress over a long period. You will be examined here each year for 
four years after the treatment. For the next 10 years, your yearly exams can be done by your 
local doctor. At each exam, a teaspoon of blood will be taken. 
SIDE EFFECTS 
The transplant can produce bad side effects. These include permanent damage to the bone 
marrow, lung disease, liver disease, other cancers, severe vomiting, diarrhea, bleeding from 
the bladder, hair loss, serious infections, fevers, headaches, seizures. You may not be able 
to have children after this treatment. 
ALTERNATIVE PROCEDURES 
If you do not want to have your bone marrow marked you may have a bone marrow 
transplant without the marking. You can also receive drugs and radiation therapy as other 
treatment for your neuroblastoma or you could have no treatment at all, but we believe that 
a transplant is most likely to cure you. 
STATEMENT OF UNDERSTANDING 
All information about your transplant will be kept among the hospital staff that needs to 
know. We will not tell anybody else without asking you first. You have the right to ask any 
questions you want and they will be answered. You have had this assent form read or 
discussed with you by your parents and the doctor (Dr. ) caring for you. 
Before you signed this form you had all your questions answered. 
If you have any other questions you can ask your doctor or Dr. Victor Santana or Dr. 
Malcolm Brenner at any time. 
I agree to have my marrow marked 
I do not agree to have my marrow marked. 
Patient 
Parent or Guardian 
Physician 
Date and Time 
vpg(wpc) 
Recombinant DNA Research, Volume 14 
[701] 
