MEDICAL 
RECORD 
CONTINUATION SHEET for either: 
NIH 2514-1, Consent to Participate in A Clinical Research Study 
N l H 2514-2, Minor Patent's Assent to Particicate In A Clinical 
r 
Research Stuav 
STUDY NUMBER CONTINUATION: page 7 of ^ages. 
and/or personal preferences in research and medical care. The Clinical Center Durable Power 
of Attorney form has no legal standing outside the NIH but helps us give you good medical care ; 
and assures that your preferences in research and medical care are respected, if you should be i 
unable to give informed consent. J 
A TENTATIVE AGREEMENT TO AN AUTOPSY 
In case of death during or after your participation in this research study, we ask you for a 
tentative agreement to an autopsy. Enrollment in this protocol implies that you agree in principle 
to have a post-mortem examination. This will provide us with an opportunity to learn more about 
the effect of our treatment of your tumor. 
ALTERNATIVE TREATMENTS 
You have been offered the opportunity to participate in this study after your tumor recurred 
despite appropriate standard therapies for your disease. There are no other standard treatments J 
that were shown to have significant effects in patients with your disease. A variety of 
experimental studies for the treatment of tumor seeding of the spinal cord lining are conducted in 
medical centers around the world, but the efficacy of their approaches is as yet unknown. In 
addition, there is always the possibility for you to decline any further treatment for your disease. 
CONFIDENTIALITY OF DATA 

This clinical procedure has attracted a great deal of attention from the media. We will 
make every effort to protect the confidentiality of you and your family. However, because of this 
media interest there is a greater risk than usual that information concerning your treatment will 
appear publicly without your consent. 
i 
You are free to withdraw your consent to participate in this study at the NIH and seek care 
from any physician at any time. This will involve no loss of benefits and will not penalize your 
care in any way. 
; at;e\T ;D5.\T F‘CA~ ON 
CONTINUATION SHEET for either 
NIH-25 1 4-1 (10-84) 
GPO 911-329 
NIH-25 1 4-2 (10-84) 
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Recombinant DNA Research, Volume 18 
